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Bonjour ❤️
Je m'appelle Muhammed Ali, je suis né le 23.12.2019. Je venais d'avoir 7 mois quand on a annoncé la pire nouvelle à mes parents ! La mort me pend au nez tous les jours, un peu comme la nourriture qui y passe (je vous épargne les détails ^^' ) J'ai reçu un diagnostic de SMA de type 1 (l'amyotrophie spinale de type 1), depuis, ma vie a changé.. Alité toute la journée puisque malheureusement j'ai la forme la plus grave de la maladie, aujourd'hui j'ai un trou dans la gorge qui me permet de respirer. MAIS il y a encore une lueur d'espoir (pas gratuite mais une lueur quand même), aux Etats Unis, il existe un médicament (l'un des plus cher du monde) 2,4 millions de dollars. Ma famille a lancé une cagnotte pour que je puisse accéder à mon traitement.
Vous pouvez me sauver de cette maladie mortelle. Nous pouvons le faire mais ensemble!
Vous pouvez suivre mes parents sur Instagram : Muhammedaliyasasin
Hello ❤️
My name is Muhammed Ali, I was born on 23.12.2019. I had just turned 7 months old when the worst news was announced to my parents! Death hangs over my head every day, kind of like the food that goes through it (I'll spare you the details ^^' ) I was diagnosed with SMA type 1 (spinal muscular atrophy type 1), since then, my life has changed.. Bedridden all day since unfortunately I have the most severe form of the disease, today I have a hole in my throat that allows me to breathe. BUT there is still a glimmer of hope (not free but a glimmer anyway), in the United States, there is a drug (one of the most expensive in the world) 2.4 million dollars. My family has started a fund so that I can have access to my treatment.
You can save me from this deadly disease. We can do it but together!
Courage ♥️
According to our statistics, a single share raises an average of 30 euros.
Fundraising link :
Qu'Allah lui accorde la guérison totale et ne laisse aucun mal, Amin