Lamia, 8 months old, originally from and living in Marrakech in Morocco, was born with a life-threatening congenital disease. Biliary atresia, for which the only and sole option for the child's survival is "a liver transplant".



Lamia is currently hospitalized at CHU Mohaemd 6 in Marrakech.






Lamia is not receiving albumin injections (the main protein in the blood), a protein that is lacking in this condition and which is nevertheless essential for the child's survival.




Biliary atresia (BA) is a rare disease characterized by an obstruction of the intra- and extrahepatic bile ducts.
It is present from the child's birth. It begins before birth.

On the other hand, Lamia suffers from malnutrition (the liver no longer absorbs fats) and from an ascitic decompensation (large-volume ascites that can cause respiratory distress because the fluid compresses the rib cage).






The bile ducts are channels that allow bile to flow within the liver, to exit the liver and to reach the intestines to be eliminated in the stools.
Bile is produced by the liver.

Beside this, Lamia is apathetic.

Without appropriate care (which is not the case in Morocco), Lamia will not survive for long.

Lamia's parents do not have the funds. In fact, it was neighbors and friends who contacted us to help them and who later generously financed a mobile phone equipped with a camera to establish contact with the association and to allow them to send regular news about the child.



In the case of BA, bile can no longer exit the liver because the bile ducts are obstructed or destroyed. Bile is therefore stored in excess in the liver and is toxic to liver cells.

The diagnosis is suspected in the presence of jaundice (icterus) with pale stools and an enlarged liver (hepatomegaly).



The treatment of BA is sequential: Shortly after birth, the Kasai procedure (hepatoportoenterostomy) must be performed quickly to restore bile flow to the intestine. If this procedure succeeds in restoring good bile flow to the intestine, the child becomes jaundice-free, the progression of liver disease is slowed or even stopped, and the child can grow with their own liver. About one third of children reach the age of 10 with their native liver (that is, without transplantation), and one fifth reach the age of 20.



When the Kasai procedure fails, cirrhosis progresses, and the treatment consists of replacing the liver: this is liver transplantation.

This is the case for little Lamia, who requires a liver transplant from a living donor as soon as possible before a fatal cirrhosis takes her from her parents.






Her mother gave her life once and wishes to donate the left hepatic lobe to her daughter to give her life a second time.

For this we need all your support.

The liver is the only organ in our body capable of regenerating itself. Indeed, in humans, up to 3/4 of the liver can be removed and it will regain its original size in 4 months. This makes the donation of a portion of the liver from a donor to a recipient feasible, because each half of the liver will then regenerate into a complete liver.



We are trying to provide her with as much help as possible by already sending highly energetic packs to prolong her life until a possible transplant if we manage to raise the funds.

We have contacted a university institution located in Turkey; here is the estimate:



We ask for your compassion and generosity as we did previously for the 16 children we transferred to care facilities.



Time is the enemy of children with acute liver failure.

Edit 28/06/2018

Lamia's condition is worsening. The little girl is abandoned by her country's healthcare system and is no longer receiving any treatment.

Her abdomen is filling with ascites, which will lead to respiratory decompensations shortly.



Lamia is apathetic

help us



The amount of the fundraiser takes into account itinerant bank fees, PayPal fees, plane tickets, accommodation and potential additional costs related to tests and care as well as an advertising budget.

As a reminder, the association has already financed since March 2016: 16 liver transplants from living donors, heart surgeries, neurological shunt operations and many others.

Whatever the amount of your contribution, by making a donation you become an important and effective link in the long chain of solidarity.

May God reward you.

We inform you that in the event of death the funds raised will be transferred to another child.

You can also send your donation by bank transfer by indicating the child's name in the reference:



If you cannot participate financially, share this fundraiser as widely as possible. Because sharing is also helping, you can participate in the fundraiser by recommending this donation page around you via social networks.

You can contact the association via our Facebook page: https://www.facebook.com/lilotcalinsdessoeursetfreresdecoeur/ or directly by email: [email protected]

THANK YOU!

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