l'îlot calins

l'îlot calins

11/06/2016 09:01

Life‑saving emergency for Sofia

160,753 on €160,000
100%
8.3k
0
91.7k

This fundraising does not accept donations anymore.

l'îlot calins

l'îlot calins

11/06/2016 09:01
160,753 on €160,000
100%
8.3k
0
91.7k

This fundraising does not accept donations anymore.

Life‑saving emergency for Sofia

Thank you to all donors for your support. Sofia is expected on 20 March at Saint Luc. On 24 January, and given the severity of her condition, the association proceeded with the transfer of the sum; at that time €3,000 was missing, which we advanced. May God reward you all!

Sofia’s parents are asking the community for help and are launching an appeal for assistance to treat their 3‑year‑old daughter. Sofia requires a liver transplant from a living donor, the donor being her mother. As you know, this intervention is not performed in Algeria and therefore must be carried out in a specialized facility.

For state coverage or CNAS, the list of requirements is long and does not guarantee coverage within the timeframe that would prevent Sofia’s condition from worsening. Biliary atresia (AVB) is a fatal disease. The only option: a liver transplant.

The mother is the donor. The liver is the only organ in our body capable of regenerating on its own. Indeed, in humans, up to 3/4 of the liver can be removed and it will regain its original size within 4 months. This makes donation of part of a liver from a donor to a recipient possible, because each half of the liver will then regenerate into a complete liver.

As with all the children previously cared for at Saint Luc Hospital Brussels by our association and thanks to your donations, the intervention is very complex and requires pre‑ and post‑transplant follow‑up for both the donor and the child. This transplant is not performed in Algeria.

Procedures are underway and the final estimate will be posted online. The hospital requires a battery of very costly tests for this family living in very modest conditions.

In the presence of biliary atresia, the duct leading from the liver to the intestine deteriorates, which prevents the liver from draining bile. A buildup of bile can then form in the liver and damage it.

If bile flow cannot be established, liver function is gradually lost, and children with the disease rarely survive beyond the age of two unless a Kasai procedure called a porto‑enterostomy has been successfully performed (1 child out of 3). Sofia’s AVB was diagnosed very early.

The procedure cannot reverse damage already sustained by the liver. Despite a successful Kasai procedure, liver cirrhosis continues to progress slowly (the scar on her abdomen testifies to this intervention).

Sofia has hepatomegaly, or a noticeable enlargement of the liver. She has no other option than a liver transplant to survive.

The liver is the only organ in our body capable of regenerating on its own. Indeed, up to 3/4 of the liver can be removed and it will regain its original size within 4 months. Each half of the liver will then regenerate into a complete liver.

The child is only taken in charge when the amount is actually available and at the disposal of the hospital. For any information: [email protected]. The child will join the pediatric transplant unit under Professor Reding if the necessary sum is raised.

We therefore count on your solidarity. Fees include bank charges. In the event of death, the collection will be passed on to another child. Here are the phone details of Sofia’s father: Adel Redjeb (+213) 05 50 03 16 02.

Whatever the amount of your contribution, by making a donation you become an important and effective link in the long chain of solidarity. Because every donation counts, because your gesture will make a difference, participate now! Everyone can contribute the amount they wish. Please note that all payments are 100% secure.

If you cannot contribute financially, share this fundraiser as widely as possible. Because sharing is also helping, you can support the collection by recommending this donation page around you via social networks.

To receive news about Sofia, you can follow our association’s Facebook page: https://www.facebook.com/lilotcalinsdessoeursetfreresdecoeur/

News (1)

25/03/2017 10:33

Donors (8300)

Anonymous
Anonymous
| + €3
28/02/2017 22:36
Anonymous
Anonymous
| + €52
28/02/2017 22:34
Anonymous
Anonymous
| + €3
14/02/2017 21:42
Anonymous
Anonymous
| + €10
08/02/2017 20:39
Anonymous
Anonymous
| + €3
07/02/2017 16:40

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