Hi I am Shevin, a lawyer specialized in Child Law from the Netherlands. I am raising funds for baby Murat Koc who is suffering from the SMA disease.

Murat needs a very very very expensive therapy with a medicine called Zolgensma.

Murat is a baby of 9 months old suffering SMA (Spinal Muscular Atrophy) Type 1. Type I, sometimes called infantile onset SMA or Werdnig-Hoffmann disease. Type I begins to affect infants from birth up to 6 months of age, with most babies showing signs of the disease by 3 months. This is the most severe form of SMA. Spinal Muscular
Atrophy is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller). SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing. Most kinds of SMA are caused by a problem with a gene called the SMN1 gene. The gene does not make enough of a protein needed for the motor neurons to work normally. The motor neurons break down and can't send signals to the muscles.

Though the treatment is very expensive, it is nowhere near impossible to collect the amount they ask for if we unite.

We want to get Murat this treatment before he is left to the fate of oxygen ventilators which will not keep him alive for too long. There have been incidents where some babies have died because of power cuts. We ask you to join us on Murat's journey and use your platform to help support Murat ♥️

! ALL EVIDENCE WILL BE PROVIDED UPON REQUEST !

How you can support Murat ⬇️

Talk to your surroundings and ask them to donate as much as possible, small steps will lead to big differences.

Join one of our lives for Murat where we call out for support.

Share his instagram page and donation links on your own stories.

Keep telling Murat's story.



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Murat, 9 aylık SMA (spinal musküler atrofi) tip1 hastası. 

SMA Tip 1 kalıtsal bir motor nöron hastalığıdır. Kas kaybına yol açan ölümcül bir hastalıktır.
SMA Tip1 hastalarının büyük çoğunluğu 2 yaşını görememektedir. Murat henüz 9 aylık, Murat'ı kurtarabiliriz.

Hastalığın tedavisi, dünyanın en pahalı ilacı olan Zolgensma adında bir ilaç ile mümkün.
Murat'ın  2.1 Milyon euronun üzerinde tutarı olan bu ilaca ulaşabilmesi için size ihtiyacı var.

Murat'ın hayatını kurtarmak için bağış yapın, destek olun.

Murat'ı kurtaralım, yaşatalım.

Destekleriniz ve bağışlarınız için teşekkür ederiz.



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Murat est atteint d'une Atrophie Musculaire Spinale de type 1.

L'atrophie musculaire spinale de type 1 est la forme la plus grave de la maladie qui invalide les personnes en affectant les cellules nerveuses motrices de la moelle épinière, en les empêchant de marcher, de manger ou de respirer. La plupart des bébés ne survivent pas avant l'âge de 2 ans et c'est la première cause génétique de décès chez les nourrissons pendant leur sommeil.
Murat a 9 mois et nous pouvons encore sauver sa vie.

Il existe une thérapie génique approuvée, appelée Zolgensma, le médicament le plus cher du monde. Il coûte (avec les frais d'hospitalisation) plus de 2,100 millions d'euros .

Murat a besoin de vous.

Sauvons Murat.

Faites un don pour sauver sa vie.

Merci beaucoup pour votre soutien.