Edit: tel: 18 09 2010

Edit

Ilyes will start chemotherapy on Monday in preparation for his bone marrow transplant.

Thank you for your duas



This is a race for life for little Ilyes, 2 years old, originally from and residing in the wilaya of Sétif in Algeria.



Beside are Ilyes before and after the progression of his congenital disease.



The child is currently being cared for at Bainem hospital where he is receiving enteral nutrition. Ilyes has been fitted with a nasogastric tube to begin tube feeding.



Ilyes has lost a lot of weight and we fear his condition is worsening day by day.



Ilyes now weighs only 6 kilos (13 kilos is the average for children his age).



Ilyes suffers from a very serious syndrome but, God willing, it can be treated by a bone marrow transplant which must be performed urgently.

Ilyes suffers from severe combined immunodeficiency syndrome.



Hyper-IgM syndrome corresponds to an immunoglobulin (Ig) deficiency characterized by elevated or normal serum IgM levels and decreased or absent levels of other serum Igs, which leads to susceptibility to bacterial infections.



X-linked Hyper-IgM syndrome is associated with an absence of antibody production (immunoglobulins G, IgA and IgE) with a normal or high IgM level (hence the name), caused by the absence of a protein called CD40 ligand, and occurs only in boys (X-linked).



The impact of his disease is severe, notably on his weight. Ilyes is therefore prey to opportunistic bacteria, especially in a hospital.....



The most frequent mode of presentation consists of acute and/or chronic infections of the upper and lower airways, and/or of the digestive tract.



Other infectious complications are possible (arthritis, sepsis, viral meningoencephalitis, parasitic infections with hepatobiliary involvement which are very difficult to treat), as well as autoimmune complications (neutropenia, anemia,…)



Bone marrow transplant is the only curative treatment to date

We call on all charitable hearts to take part in raising funds for this child whose life prognosis is at risk in the short term if we do not act.



Ilyes must receive urgent care!

Let us help Ilyes' father Abdel to regain his son's beautiful smile.



If we raise the funds, the child will be taken care of within the Acibadem group with whom we have carried out numerous successful liver and bone marrow haploidentical and allogeneic transplants.



Thank you for your support and your interest in Ilyes



Please widely share this call for help around you.

May God reward you.

09/10/2019

This morning I received antibody (immunoglobulin) injections which are necessary when the body no longer produces them in sufficient quantity.

Ilyes weighs 6 kilos. His average weight should be 13 kilos for his age.

I continue my fight — stay by my side!



Ilyes back at his home






Please indicate the patient's name in the transfer reference for any bank transfer to the association's account:

DO NOT UNDERESTIMATE A SHARE OR EVEN A DONATION OF 1 EURO!



I have been transferred to Turkey and here they pamper me ❤️❤️❤️



enutrition estimate

You can contact the association via our Facebook page: https://www.facebook.com/lilotcalinsdessoeursetfreresdecoeur/ or directly by email: [email protected]

Whatever the amount, anyone can contribute to this fundraiser. No need to create an account or register, it's quick and payments are 100% secure.

If you cannot participate financially, share this fundraiser as widely as possible. THANK YOU!

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